Two frozen type 1 diabetes insulin flexpens from flying with diabetes

I Froze My Insulin Flexpens On The Way To Europe—Tips For Traveling With Insulin Internationally

My First Time Traveling With Insulin And I Froze My Insulin Flexpens

I knew that flying with diabetes and traveling with insulin was going to be tricky. Still, I never thought I would have two frozen insulin flexpens after my first international flight while on the way to Portugal for three months. It was barely a year earlier that I had been diagnosed with Type 1 diabetes. At age 42…and having just sold everything I owned to become a location-independent nomad. And it was my first time flying with diabetes supplies. Heck, my first time flying since diagnosis…which happened during the height of Covid. 

Just to be clear, this little ditty is for you (or a friend or family member if you’re willing to share) if you are planning on traveling with insulin, regardless of what type of diabetes you may have. 

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I’ll talk about how I got the courage up to travel with diabetes—long-term travel internationally at that—under such ominous circumstances. We’ll also talk about insulin producers, the insulin travel case I was using, and more importantly the insulated insulin travel case that I use now. If you’re planning on traveling with insulin, it will be tricky. 

So I hope this story gives you the confidence to know that you’ll figure it out when things go wrong…because they will go wrong. 

READ NEXT: I just got diagnosed with Diabetes and I’m FREAKING OUT!
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Leading Up To This Trip: Selling It All, Going Nomadic, And Getting Diagnosed With Type Diabetes

Quick recap on the two years before this trip, and before I was diagnosed with Type 1 diabetes: 

  • 2 years before this trip – Sold my house and belongings so that I could be nomadic, after a lot of learning and life changes. Oh…I had only traveled to three countries outside the US…at age 41. After selling, I overlanded across the US then fast traveled across Europe and saw a few more countries. (To be clear, I recommend slow travelnot fast travel like I did!)
  • 18 months before this trip – I was in Queretaro, Mexico for two months, which ended with me flying home at the beginning of travel shutdowns due to Covid.
  • 12 months before this trip…almost to the day) – I was diagnosed with Type 1 diabetes at age 42. I was single and traveling solo, so it was a pretty rough time. 
  • 3 months before this trip – I felt that I was doing “well-enough” living with diabetes while locked-down in the US. But I realized that I had to get back on the horse and figure out the ins-and-outs of flying with diabetes. Well…flying with insulin more specifically, and what my digital nomad, location-independent life would entail moving forward. So I bought the ticket.

Because one thing was certain—I was not willing to let being diagnosed with Type 1 diabetes stop me from experiencing the people and the world and growing in the ways that I know travel can allow us to grow.  

READ NEXT: Lessons from My First Year as a New Digital Nomad – Sell It All!
I Just Got Diagnosed With Diabetes And I’m FREAKING OUT!

Planning To Travel With Type 1 Diabetes 

After about 8-9 months of learning how to live with Type 1 diabetes—and being forced to stay put in the US during Covid—I started planning to travel internationally again. Honestly, that idea was scary as f*ck, but again, I wasn’t willing to let fear stop me. I started kicking irrational thoughts aside and attempted to think rationally. 

The reality that had eluded me to that point was that millions of people around the world live with Type 1 diabetes every day. 

And most of the countries I will be visiting while I spread my wings as a world traveler are considered well-developed. Read: There is access to insulin and basic diabetes care.

Now, I understand that this is a privilege and many people with Type 1 diabetes around the world (and even in the US) may not have this opportunity. I’ll continue to advocate for change, but right now I’m playing all the cards I’ve been dealt. I know how much traveling can open my…and your…eyes, so continuing that course is a start. 

To help cancel out the largest fears of traveling internationally, I started doing research to find some backup plans in specific areas. I suggest you do the same, even if you’re just planning to travel with Type 1 diabetes domestically.

READ NEXT: Analysis Paralysis? Rigid Plans Are Overrated—BackUp Plans For The Win!

Research About Travel With Type 1 Diabetes You Should Consider:

  • Know your rights and what you’re allowed to carry with you when flying with diabetes, at least when entering/exiting through US airports
  • Read this article about how travel medical insurance treats emergencies when you have Type 1 diabetes and any other pre-existing condition
  • Then get travel medical insurance for any trips you take internationally!
  • Get a medical evacuation policy, which picks up where your travel medical policy might stop, and gets you back home if you do have a significant medical emergency while traveling with Type 1 diabetes…or for any other major medical emergency
  • Research which countries have easy and inexpensive access to insulin—even if you travel with your own insulin—you know, in case you accidentally freeze it on the plane…
  • Know your outs and be ready to spend some extra money if you need to pull the plug on your trip and get home. Sometimes just learning, going home, and trying again later is enough of a growth moment to push the needle

Insulin Producers & Diabetes Around The World

One of the things I realized was that I could pack double the supplies until the cows came home, but I would need to have a backup plan for insulin and all of my diabetes supplies in case something happened. 

For instance, my bag could get lost or stolen. Or hell, my hostel could burn down while I’m out exploring. Unlikely, but better to at least have a little bit of a plan. That led me to researching where our insulin comes from, and where the insulin producers were in the world. 

Doing the research, I began to notice that many insulin producers are actually located in some of the exact regions I was planning to travel. 

The insulin aspart flexpens I used were Novolog, and the basal insulin flexpens were Tresiba…both from the insulin producer Novo Nordisk. And Novo Nordisk is based in Europe; Denmark to be specific. 

Many Other “World’s Largest” Insulin Producers Are Located In Europe

The majority of the major insulin producers in the world have licenses to produce insulin in nearly 100 countries. Combine this with the more socialized medical products and care available in Europe, and I realized that I would have options, no matter the cost, in case of an emergency. 

Further research into Portugal uncovered that they really take care of their citizens so far as diabetes goes. 

Citizens of Portugal that have Type 1 diabetes get free insulin…a novel idea…considering they literally need it to live.
(Wish the US would get on board with that.) 

Where the US has the highest cost of insulin in the world, Portugal has one of the lowest. And at the time, Portugal had the highest vaccination rate against Covid in the world. 

Knowing that people with diabetes have a much higher likelihood of major complications if diagnosed with Covid, this made me feel much better about the possibility of actually getting Covid while traveling with Type 1 diabetes. 

So at this point, I stopped planning to travel and bought the ticket! I got my travel medical insurance and my yearly evacuation subscription coverage. I Booked a hostel or two for the first week in Portugal so I could get my bearings…then packed my bags! 

How I Froze My Insulin Flexpens 

Well, to be clear…I didn’t freeze my insulin flexpens. The very kind and well-meaning flight attendant on my long transatlantic flight to Portugal accidentally froze my insulin flexpens. Specifically, only two of my basal insulin flexpens out of the hoard of both basal and aspart flexpens I had packed. 

Oh. Did I mention that I was able to pack carry-on-only for three months if Europe? And that included enough of my Freestyle Libre 2 CGM applicators! Note that the insulated insulin case that I had been using while traveling with insulin up to this point did have small icepacks, but those would not keep my insulin cold enough for an entire transatlantic flight. 

Packing carry on only with type 1 diabetes medications
Packing carry on only with type 1 diabetes simplified
Packing carry on only with type 1 diabetes

I didn’t yet have my game-changing, USB-powered insulin travel case cooler. I had ordered it, but it didn’t arrive by the time I left. 

Before boarding my flight, I found the most important looking person I could from the airline. She was in charge of the entire crew, so I explained to her that I was a Type 1 diabetic and traveling with insulin. I asked if there was a way that I could have my insulin refrigerated while in flight, and she coordinated with an attendant. 

My labeled bags for insulin when traveling internationally

“These Insulin Flexpens Can’t Be Frozen…Only Refrigerated!”

When boarding, I was very specific that my insulin flexpens couldn’t be frozen…only refrigerated. I even had written it all over the bags I had my insulin flexpens in. I handed them off and just tried not to be hella-nervous the entire flight. When we landed, I waited to be nearly the last one off and found the attendant and followed her to retrieve my insulin. 

She opened the small refrigerated drawer and I saw my packet of 10 insulin flexpens…sitting on top of a bag of ice.  

I knew that the attendant meant well, so I thanked her and exited the plane with my extremely cold insulin flexpens. When I got to the concourse I frantically popped off the top of each flexpen to see if my insulin was still nice and clear. 

8 of the 10 flexpens were fine, but two were frozen solid…even expanding out of the end. The two that had been sitting directly on the ice for about 7 hours.

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At This Point I Started Doing The Math

I knew that I had packed 1 extra flexpen for each type of insulin. Each could last me for as many as 4-6 weeks depending on my daily cardio level, eating habits, and reduced efficacy of the insulin after being opened and not refrigerated. 

Many sources will tell you to travel with twice the amount of diabetes supplies necessary, but with the three-month trip I was planning, that wasn’t even possible.  

I realized that I could likely make it through my entire trip with what insulin I had left, barring any other insulin-related emergencies or missteps. Regardless of that, my plan all along was to do as much research as possible about traveling with insulin and to learn some new best practices for traveling with Type 1 diabetes.

I needed to do it for myself, and also so that I could help others (that’s you) feel more confident traveling with diabetes or any other pre-existing condition. So I got to work. 

Researching While In Portugal For Three Months

Now that I was settling into Portugal, I got to work with my research. Honestly, it was intimidating…but just like many other things…mostly just in my head. In each city or town in Portugal I visited, I found 1-2 pharmacies and simply started asking questions. Much like nearly every other Portuguese citizen I met, the pharmacists were extremely happy to help me and answer as many questions as I could ask. 

I let them know that I was an American traveling with insulin and would be in Portugal for three months. Therefore I wanted to understand my options in case I needed to purchase more insulin or other supplies. 

I showed them the exact insulin flexpens I was traveling with and they looked up the prices. When the first pharmacist told me the cost…for a box…I actually had to confirm that I had heard him right. 

The cost for a box of five insulin flexpens…out of pocket without insurance…was less than $15 USD per flexpen in Portugal!

Having seen my “before insurance” costs listed back home, this was both amazing and very disheartening. Knowing that I was planning to start an insulin pump when I returned home, I also asked about generic insulin aspart vials. 

Insulin Costs Are Monumentally Less Pretty Much Anywhere Outside Of The US

The cost for enough vials of insulin aspart to get me through a year would cost much less than $50 USD…without insurance…in Portugal. (smacks head)

I also asked what I would need to do to get the insulin, and let them know that I had printouts of all of my prescriptions and doctors letters from the US if I needed them. Most pharmacists said that would be enough, but some said I may just need to make a consultation appointment with their head pharmacist onsite to write me a prescription…but that it should be very inexpensive and easy. 

READ NEXT: Travel Medical Insurance, Pre-Existing Conditions, & Type 1 Diabetes

Other Diabetes Supplies I Asked About While In Portugal

Note that at the time my Freestyle Libre 2 CGMs were considerably expensive out of pocket even in Portugal—around $70 USD each. And at that time in Portugal, there wasn’t an option to get any Dexcom G6 CGMs. Know that moving forward would at least help me when planning future trips. Getting insulin flexpen tips was super easy and cheap, as was the case with most of the other less critical diabetes supplies I asked about.

The Rest Of The Trip In Portugal

The rest of my reality was that would be traveling with insulin throughout Portugal, staying at different hostels, and I still needed to manage my storage. At nearly every hostel I spoke with the owner or just the staff upon check-in, and they all made accommodations for my insulin to be stored and refrigerated somewhere safe. 

This was still scary, but even if I had another issue, at least I knew that I could get more insulin fairly inexpensively. 

I made it the entire three months in Portugal without another problem with my insulin. And because I was walking so much and eating so healthily, I actually adjusted my daily insulin use down significantly. There was no need for me to buy more insulin during the trip.

Traveling With Insulin Now: The Insulated Insulin Travel Case I Use

Since returning to the US, having dealt with the minor emergency of freezing my insulin flexpens, I knew I had to have a better plan for airline travel as well as for when I was staying in different hostels. Handing over my insulin and trusting I would get it back…useable…was mentally exhausting. 

My type 1 diabetes insulin case
My daily carry case for un-refrigerated insulin and diabetes supplies

The insulin travel case I was using with simple ice packs just wouldn’t cut it, and it wouldn’t make me feel confident. That said, this one is still the one I use daily for all of my insulin gear and insulin that doesn’t need to be refrigerated. But now I own two different-sized insulated insulin travel cases. 

My main insulated insulin travel case is larger and USB-powered, so it’s essentially like a mini-refrigerator for my insulin. It’s able to keep my insulin cool endlessly if I keep it plugged in to either wall-power or a portable USB backup charger. 

My other insulin travel case is smaller—enough for 3-4 vials of insulin—and has a rigid ice pack that will still keep my insulin cool for nearly a day. 

My go-to insulated insulin cases to avoid freezing insulin flexpens or vials

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Sometimes these things feel like they cost a lot, but at the end of the day, the gains in confidence I get from them while traveling are well worth the cost. And assuming these are treated well and maintained, I have no doubt they’ll last for years and many, many trips. 

Having them means I have to worry less about traveling with insulin so that I can concentrate on all the other things I still need to learn to get comfortable with international travel with Type 1 diabetes. 

Traveling With Type 1 Diabetes And Traveling With Insulin: What’s Next?

First, if you’ve read this far, thank you! If you think someone you know or love can gain some confidence or tips about traveling with Type 1 diabetes—or with any other major medical condition—please share this article with them. Second, I hope you’ve gotten something out of it! 

As with living with Type 1 diabetes, learning about traveling with diabetes—especially internationally and long-term travel—will be a marathon not a sprint. 

For me, I’m now on an insulin pump and a new CGM. That change means I’ve moved on from flexpens and now I’ll be traveling with insulin vials. No more need for flexpen tips. Now I’ll have to make room in my carry-on luggage for infusion sets and cartridges…at least until I know what I’ll have access to wherever I go. 

Side note here: Internet research about actual costs on the ground in other countries wasn’t too helpful. That’s why I’m doing this myself.

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As of this writing, I’m just coming up on my two-year “diaversary. ” I’m well aware that there is so much more I have to learn about how Type 1 diabetes affects me and how it affects others differently. My story is my own, and any of the things I’m learning will have to be tweaked for your situation. But I’m oddly excited about the journey ahead…both for myself and for you. 

I hope you’ll reach out and connect! Leave a comment if you have anything helpful to contribute that might help others! 

Cheers! (Oh…And don’t forget to share this with someone that might need to read it!)
-Jason

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More Articles About Type 1 Diabetes & My Experiences
I just got diagnosed with Diabetes and I’m FREAKING OUT!
Diabetes Symptoms For Noobs – My Type 1 Diabetes Symptoms & Diagnosis Story
Travel Medical Insurance, Pre-Existing Conditions, & Type 1 Diabetes

Travel Planning Tips

Figure out where you are going & how are you getting there…
I suggest using at least 2 to 3 different travel search sites. Start with Skyscanner or Orbitz or Booking …or whatever aggregator site you prefer. Then when you see what airlines to use, check their respective sites for better deals or rewards flights.

Figure out where you’re going to stay…
If you’re interested in hostels, search Hostelworld or Hostelling International. For longer-term or more private digs, look at Airbnb, VRBO, or you can look for hotel rooms in the links from the search engines listed above. 

Get comprehensive travel insurance, or in the least, travel medical insurance if internationally…
Especially with Covid not going anywhere, get covered. Start an insurance aggregator like Insure My Trip, or with SafetyWing, World Nomads, Travel Guard, or TravelEx. Then decide what is important to you; trip cancellation, baggage coverage, medical, or all of the above. 

Need more resources? Click here!

The beginner traveler's guide to going nomad book by Jason A. Robinson

Tough Love, Tips & Strategies To Help You Finally Kick-Start Your Travel Life…Or Go Full Nomad!

Been wondering how the hell all those digital nomads, location independent travelers, and remote workers, travel “full-time?” Maybe you’ve thought about living that life one day, but you’re really not sure where to start.

Beyond giving you the stepping stones to dive into short-term domestic and international travel, this book will show you how long-term travelers extend those tools, maximize their budgets, and turn weeks into months…or even years…of traveling the world indefinitely.

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